Journal on Developmental Disabilities
Le journal sur les handicaps du développement

 Volume 10, No. 1 other issues

Living and Aging with a Developmental Disability:
Perspectives of Individuals, Family Members, and Service Providers

Penny Salvatori, Mary Tremblay, and Joyce Tryssenaar

Abstract

Adults with developmental disabilities are living longer, living in the community, and participating more in society. However, little is known about their day-to-day "lived" experiences and overall quality of life. Using a qualitative research approach, three pilot studies were conducted in two urban centres in Ontario to explore this issue from three perspectives: adults with developmental disabilities, family members, and service providers. Forty-eight volunteers participated in individual interviews or focus group sessions. Preliminary transcript analysis reveals several common underlying themes: social relationships, autonomy, overall life satisfaction, positive changes, health and aging, role of religion, societal attitudes, concerns for the future, and meaningful activity. Important differences existed, however, across the three perspectives. Implications for policy, service delivery and future research are discussed.

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copyright February, 2005. Ontario Association on Developmental Disabilities.  All rights reserved.